There is some confusion about what CEBV (Chronic Epstein Barr Virus) actually is. So, let’s map things out so we know where we are.
CEBV is not mononucleosis. While “mono” is caused by Epstein Barr virus, it is an event, not an ongoing condition. You get it, you get over it. That happened to me in my late 20’s. Missed a week of work.
CEBV is when the virus (which remains latent in the body, once you’ve had “mono”) decides to set up housekeeping. With CEBV, the virus is no longer content to be a wallflower…it wants to take center stage, at least now and then. On these occasions, one is said to have a recurrence or reactivation of the virus. This results in all the regular symptoms of “mono” (fever, extreme fatigue, swollen painful lymph glands and perhaps spleen/liver) but you get extra bells and whistles thrown into the deal, like:
“…aggression, allergies, anxiety, cold sweats, confusion, decreased alertness, reduced motor skills, minimized stress tolerance, depression, trouble concentrating, trouble completing mathematics or other reasoning tasks, trouble urinating, dry cough, earaches, excessive worrying, severe fatigue, fever, headaches, hostility, hypersomnia, increased nasal congestion and dripping, irritability, insomnia, ringing of the ears, shingles, paranoia, sore throat, sore muscles, joint soreness, tremors, light sensitivity, mood swings, mild delusions and/or migraines.”
The things I have going on are in bold (I think there are a lot because the condition went so long misdiagnosed, so I kept pressing on)…and may or may not overlap with my fibromyalgia diagnosis and/or the very pleasant manifestations of perimenopause. Even the doctor I saw agreed with me that it is very difficult to discern where one set of symptoms begins and where another ends. I love a good mystery, don’t you? 😉
I had a lot of these things happening intermittently over the past 15 years or so. It never occurred to me to be tested for CEBV. When my throat started swelling, and the area under my rib cage began to become tender, it all came flooding back to me from my 20’s…wow, this feels like “mono”. I did some online research (my doctor, unlike some, enjoys having patients who read up on stuff), and made the appointment. In a few days, there it was in the blood test results.
At last, a diagnosis. It was not in my head. There it was, on paper. I felt oddly giddy to be able to call it something! Now that we know who the “enemy” is, we can formulate a plan of attack. See the protocol given in the tabs at the top of the page.
If I could say anything to encourage you, if you have a still-nameless condition, aside from prayer, is don’t stop reading, and asking questions. A good physician won’t think any of your queries are dumb…if they act like they do, find a new one! Don’t listen to people who have not walked in your shoes and read one article in a woman’s magazine, ready to slap a diagnosis on you. Keep forging ahead! If I can pray for you, please let me know.
If you have someone in your life who suffers from a chronic health challenge, the number one thing you can do for them is to read up and understand it. My husband just recently made sure I ordered this little book of encouragement, and then read it himself. It was a very romantic thing to do! 🙂